Category Archives: Uncategorized

MS and Vitamin D Revisited

100_0444      Lately I’ve read a virtual ton of reports and studies about Vitamin D and its possible cause and effects when it comes to Multiple Sclerosis. I think it’s great that science seems to be homing in on Vitamin D deficiency as being at least one of the likely players in this complex disease. I’m also glad to see that many Neurologists are now advising their patients to start taking a Vitamin D3 supplement as a possible way to slow down the progression of MS and Alzheimer’s as well. I do take it, and I honestly feel, that it helps.

     However, when I start seeing advertisements for very expensive UV lighting apparatus marketed to people who have been diagnosed with MS to help them boost their skin’s ability to develop more of this vital vitamin on their own, then I start to have a problem. The first one should be obvious to almost everyone, in that, UV lighting can be a very dangerous way of trying to enhance your skins ability to produce more vitamin D when the increased prevalence of developing skin cancer is factored in. And second, I am not at all sure that more Sun light from either the Sun or artificial UV lighting is where the true problem exists.

     Why? Because as a kid I spent seemingly all day every day outside whenever I could all year long, which makes me think that the problem may lye more in the skins ability to convert sunlight into Vitamin D then the actual amount of Sunlight that a person receives over any given period of time. It’s already a fairly well established fact that people with darker skin pigment are far less likely to develop MS in the first place then individuals, like my self, who have much fairer skin tone to begin with. My opinion is that it is far more likely that a genetic defect in the skin itself is mostly to blame for my skin’s inability to produce this vitamin on its own.

     And I just don’t think that using artificial light in this way is a beneficial addition to people like me. And in fact, it may be far more dangerous in the end then just adding a Vitamin D3 supplement to your diet. But that is a risk that each one of us must first weigh and ultimately decide on our own!

 

By

Bill Walker

 

MS Depression Robin William’s Tribute

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Robin William’s winning Academy Award

     What an incredibly sad tragedy it was to lose one of America’s funniest and all time greatest comic geniuses Robin William’s to suicide brought on by a debilitating case of depression. If one good thing could come out of this horrible event it would be a moment of awakening of America’s collective compassion, as well as acceptance, of the serious nature our mental health problems really are in this country. We can no longer ignore and try and bury this growing issue in the deepest recesses of our health care system as if it doesn’t pertain to every single individual nationwide, or even worldwide, for that matter. It is past time that we finally relegate mental health with equal concern to all other considerations in our health care system.

     As a person who suffers from MS I know this all to well as I have spent many of my working years in the mental health field as both a group home counselor and as a unit coordinator in a mental health treatment facility. But there is even a bigger reason for my concern and interest in the field of mental health. As a child, I was also diagnosed with mild to moderate depression. And in a strange way my, on again off again, depressive state is much like the multiple sclerosis I was diagnosed with sixteen years ago in that it can be triggered into an active dark state of being only to recede just as quickly back to a place of relative remission. And also just like MS, depression is a silent and invisible intruder, that stalks its prey with little if any noticeable changes to anyone outside of the person who is experiencing its extreme emotional and physical wrath.

    In my case, I have been extremely fortunate to never have been so consumed by my inner demons as to consider suicide a viable alternative, but that doesn’t mean that from time to time I must find the inner strength to face these forces of emotional mental destruction head on. And my deepest battle with these personal enemies came simultaneously, which one would expect I think, with my diagnoses of multiple sclerosis. It rocked my mental world in the worst kind of way right to its core. At that time I couldn’t think of anything any worse that could have ever happened to me. Which of course, isn’t true. But it did take me two plus years of being on the antidepressant Zoloft along with strong family and friend support before again the Sun finally rose in my world.

     I am very happy to report now that I have been reasonably safe and sane for going on nearly ten years, but I am always aware that it takes vigilance and a positive outlook on all aspects of my life to remain ahead of the many pitfalls that can occur without warning to stay one step ahead of depression. And one of the biggest things that I have come to realize in my fifty seven years of life is that we all, without exception, can fall victim to our own mental instabilities and emotional environmental trauma’s. And just like the flu, anyone at anytime can have a mental health crises. And it’s nothing to ever be ashamed of because it’s just one more of our shared human frailties!

      RIP Robin, we’ll miss the laughter that you brought into all of our lives!

 

By Bill Walker  

 

MS and Eye Flashing Shadow Snake

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Eye of the Shadow Snake!

     One morning about three weeks ago I wasn’t terribly surprised when I woke up to the flashing strobe light sensation that often accompanies one of my MS attacks when I first got out of bed. I had known for a couple of months that I was experiencing my somewhat annual flare up so it didn’t strike me as being any big deal as that is normal for me. The only thing that was different on this occasion was that the flashing seemed confined to just my right eye when usually it’s in both eyes. However, I have become used to the fact that my attacks are never exactly the same from year to year so I paid very little attention to that fact.

     It wasn’t until the next night when I was driving to a local baseball game that the real strangeness taking place in my right eye was to get my total undivided attention. As I was driving the flashing started to give way to this grid of dark spots that covered part of my vision which was bizarre, in that, I have never had that as one my symptoms during an MS episode before. I felt like if I had a pencil I could have easily played that kids game of connect the dots and that’s exactly what this grid looked like as I gazed threw it and onto the rest of the world which is also a bit distracting when your watching cars coming at you at fifty to sixty miles an hour. But the strangest and literally the scariest symptom was, as yet, to come.

     Upon reaching the game what I can only describe as a snake or worm like dark shadow began making figure eights throughout my line of vision, but again, just in my right eye, which at the time, I was thankful for because one of my biggest fears about MS is eventually going blind. The thought of losing my eyesight, to say the least, terrifies me when ever I have MS related eye problems. The worm continued its seemingly prearranged journey through most of the rest of the baseball game until about the eighth inning when it began to fade into the twilight of the oncoming darkness beyond the lights of the stadium. And thankfully it was completely gone by the time I started the long drive back home, but most certainly, not forgotten.

     It just so happened that I had a doctors appointment with my regular family doctor the next day and after describing my previous day’s experience my doctor scheduled an emergency appointment with my Optometrist the very next day after that. When I woke up that next morning, and as I prepared to leave for my appointment, I was greeted by what seemed like a hundred floaters moving around my field of vision in my right eye, which was kind of like watching a meteor shower in my head.

     Fortunately, it did not take long for my Optometrist to figure out what was happening, and what was happening had absolutely nothing to do with Multiple Sclerosis at all. He explained that as we get older there are tiny fibers in our eyes that attach the gel like substance inside of the eye to the Retina and sometimes these fibers break causing all of the symptoms that I had previously described. He referred to it as a Vitreous Detachment which I quite honestly had never heard of before. He went on to explain that this can only happen one time in each eye and that people who had this happen in one eye were far more susceptible to having this happen again in the other eye at some later date.

     As my fear of losing my sight began to abate he told me that it would probably be about thirty days for the floaters to finally disappear altogether, which seems to be just about right as it’s been about that long, and I’m not noticing to many of these any more. And let me add this, this was not a great experience to have, and I’m certainly not looking forward to going through this again if it does happen, but at least I’ll now what’s happening the next time, the terrifying shadow snake comes to call!

By: Bill Walker

MS Obamacare: My Story

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Foothills Of Washington State

 

     For many people The Affordable Care Act, otherwise known As Obamacare, has been nothing more then big government attempting to take control of their lives, for myself on the other hand, it’s been nothing less then a Godsend.

     After losing my job in 2010 to the recession, I discovered that the job market was not going to be kind for someone with my limitations due to a Multiple Sclerosis disability. As the weeks, months, and eventually years wore on the task of finding new employment drained me to the point of depression and despair. Of course, along with losing my job, I also lost my healthcare plan which only added to my frustration and deepening depression.

     As my blood pressure began to spike, my prescription to control it ran out, I was left with only one other option for my future care and my sanity. With my stress levels careening out of control I had no other option but to apply for Social Security Disability. However, much to my surprise, even after being found legally disabled I also found out that does not automatically mean that you have health care coverage.

     I was amazed to find that I had somehow fallen into a black hole where I made to much money from disability to qualify for Medicaid coverage but not enough to be able to afford any other health care coverage.

     All of that changed in January of 2014 when The Affordable Care Act was fully implemented. The new rules did make me eligible for Medicaid. I was finally able to afford to see a Doctor and get my blood pressure medication restarted along with having an operation for a Hernia that had been painfully getting worse for months on end.

    Obamacare worked for me, please give it a chance!

MS And A Patient Bill of Rights

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Orange Sunset by Bill Walker

      I presume that just about everyone has heard the rumors or conspiracy theories about large drug manufacturers finding and then suppressing cures for diseases like Cancer and even Multiple Sclerosis. I’ve even heard, though there is no proof of this, that the American Cancer Society has been guilty of this kind of fraud for the simple reason that a true cure to cancer would not only put the drug manufacturers, and their various assorted treatments, out of business, but would also in effect put everyone at the ACS out of their respective jobs as well.

     And I’m pretty sure that anyone who had one of these currently incurable diseases would be as shocked as I would if this ever became a reality. I just can’t fathom that anyone could be that heartless and soulless as to permit this kind of tragedy for the sole purpose of individual or corporate greed. And yet, as much as I don’t want to believe that such a thing could really happen, I am left with the reality that such a scenario has probably already come to pass if not in medicine then in some other field like automobiles. Where there seems to be some evidence that a major oil company bought the patent to a carburetor that was capable of getting a hundred miles to a gallon of gas and then destroyed those blueprints to ensure higher oil sales and profits while our environment continues to decay.

     With all of that said, I can’t help but to wonder if a Patient Bill of Rights, that would include all incurable diseases, might help to dissuade any research company, or corporation, from ever letting this happen. At the very least, one would hope, that a whistle blower might step forward because of a Patient Bill of Rights and expose a large research corporation when their personal conscious could no longer remain silent with such a horrific crime against humanity.

   In short, I think we need to combine our resources, and get a Law Firm to write some kind of binding Bill of Rights to protect those of us who have these devastating diseases. And to offer a large financial bounty paid to any whistle blower who could provide proof of such a scenario as the ones I’ve outlined above!

Bill Walker

SUBWAY

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     I wonder how many people are aware that Subway Sub Shops were created by a group of health conscious Doctors who were disgusted with the fast food choices that Americans had to choose from without a real single healthy choice among the entire bunch. Subway set out to prove that you could get a wholesome low fat, low sugar, and low cholesterol meal for a reasonable price in the same amount of time that most fast food restaurants take to prepare a meal. I applaud Subways conscious effort to help and create a healthier lifestyle for all of the people who visit their unique restaurants and 100_0409offer their own customer support to a healthier world.

     And now I would like to ask Subway to do me a favor, I really want this incredible company to take a stand against Multiple Sclerosis and all of the autoimmune disorders like Lupus, Rheumatoid Arthritis, Crohn’s Disease, as well as all of the other devastating diseases that fall into this category.

     And I have created a unique way of asking Subway for their help and support in the 100_0412battle against these terrible disorders that many of us fight on a daily basis. And it starts by asking you to support them by ordering one of their new Flatizza’s the next time you visit one their restaurants. But instead of having them use Marinara sauce for the base ask them to substitute it with Ranch Dressing instead of Marinara and I sincerely doubt that you will be disappointed with this switch, in fact, I like them even better with Ranch Dressing.

     If we can get enough people to order Flatizzas in this manner I’m hopping that Subway will commit to helping to end these incredibly debilitating diseases in our lifetime. And I am also sending a copy of this letter to Subway Corporate so they are aware of our fight and why we would like their support.

    100_0414 Please help me in this endeavor and order a Flatizza today with Ranch Dressing and enjoy something different that I hope will symbolize a new beginning and the end to these awful diseases!

Bill Walker

MS Cancer Diabetes Anything Else?

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Ferry Ring or the Circle of Life

    

     Roughly fifteen years ago I was diagnosed with Multiple Sclerosis and I was instantly thrust into a new way of life that, I might add, I had not asked for. And then about four years ago a lesion on my neck, just to the right and below my right ear, was diagnosed as being pre-melanoma and required a surgical procedure to remove it. I so far, have been fortunate enough not to have had any more of these kinds of lesions. However now I will always have to be, especially since I have very fair skin, very careful about any skin anomaly that I, or my doctor, may find. Yep, just one more thing that I have to worry about as I get older.

     You know, it seems to me that anyone who is diagnosed with something like Multiple Sclerosis or Cancer should never again have to face a life changing health issue of the same magnitude. And now I’m two for two as I travel into my twilight years of this lifetime. And now I am more then totally convinced that the Eleventh Commandment should have been, If thou suffers from one terrible disease then thou shall not have to ever face another one in this lifetime.

     And for me, unfortunately, it doesn’t end there either. My family is just loaded with diabetics and pre-diabetics as far as the family tree can be traced. And I was aware of that when I was first diagnosed with MS so I read what I could find out about this on the internet which of course is not always the most reliable of sources but when I was looking, all those years ago, I was lucky just to be able to figure out how to get onto the internet in the first place so questioning what I was reading wasn’t exactly a concern at the time.

     At any rate, I was quite relieved when I stumbled across an article, or opinion, you decide, about people who had been diagnosed with Multiple Sclerosis rarely ever being diagnosed with Diabetes from that point on. Which, of course, isn’t true but there is a strange ending to my story here in the present day. While everyone else in my families blood sugar soars after they eat mine does not. And this has left a couple my doctors quite perplexed, so in my case, maybe the MS Diabetic thing is true after all? Well, I can only hope so, because there is also a fair amount of Cardiac Disease in my family as well. But that’s another story, and another worry, for another day. Right now, I’m just happy that all I have is just MS!

Bill Walker

MS Me and facebook

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                                              book

     Recently I was cruising around the internet super highway, otherwise known as the World Wide Web, when I suddenly stumbled into the facebook police upon entering my home page. I soon realized that facebook had issued a cease and desist order for using the friend request button on too many occasions where I didn’t personally know these individuals outside of facebook.

     Alright let me be honest here, and admit, that I really didn’t know the people I was friending on a personal level. But this kind of leaves me wondering just what social media is if you can’t go out and meet and socially interact with other people in this manner? I have used facebook and other similar sites to make friends with people from all walks of life from all around the world which is what I thought this was all about in the first place, am I wrong in this assumption?

     In my opinion, I feel that I had a very good reason to make the requests that I was making to the people that I was making them too, we all belong to the same exclusive club in that, we all suffer from the debilitating disease called Multiple Sclerosis. And anyone who shares the MS experience with me, I consider a friend, no matter if I have met them personally or not. When I say, “I feel your pain!” to anyone in this group they know I literally mean it! And that brings a little bit of peace and understanding to all of us who share this unfortunate autoimmune disorder.

     Many years ago I was told that if you don’t have a solution to the problem you’re complaining about then it’s just whining. And so, here is what I would like to suggest to facebook as my solution, please add a second option like a, consider request, where the person can accept you as a friend or just ignore your request and after, let’s say 48 hours, the request would just automatically drop off of their page. That way no ones feelings get hurt but still leaves the door open for people to make new and lasting friends with others from around the world.

     Finally, just so everyone knows, you can friend me no matter who you are and I will accept your request, and if someday we end up having a difference of opinion, that’s ok because we would never have had the chance to find a solution if we were never allowed to meet in the first place. And to me, that is what social media is all about. Friend me all you want, and if you choose to unfriend me in the future, that’s ok too!

 

Bill Walker

Something Different

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Decaffeinated Celestial Tea

   100_0384 I am always amazed when I put a clear plastic or glass container of water with tea bags in it out to brew in direct sunlight at just how many people ask me what I’m doing? And to those people who have never had sun brewed tea all I have to do is just let them try it and they almost always admit that it’s the best iced tea that they’ve ever had. If you’ve never done this the process is very simple: Put six or eight tea bags, depends on how strong you like your tea, in a one to two gallon clear plastic or glass container and put in direct sunlight for at least four hours. That’s it, refrigerate and serve over ice. Be careful of glass it’s heavy and obviously will shatter if you drop it.

     My personal favorite kind of tea for sun tea is decaffeinated Celestial Teas because 100_0385they have a naturally sweet fruity flavor that doesn’t need any added sugar. However any kind of tea bag will work just fine. And if this turns out to be a really hot summer, which is what the weather people are predicting, then there is nothing better to cool off with then ice cold sun brewed tea!